DATAMIND: Data Hub for Mental health INformatics research Development
Lead Research Organisation:
Swansea University
Department Name: Institute of Life Science Medical School
Abstract
DATAMIND: Data Hub for Mental health INformatics research Development
What is the problem?
Poor mental health affects everyone at some point in their lives to varying degrees. It is the biggest cause of ill-health and the links, both ways, between physical and mental ill-health are often overlooked. People with mental illness are less likely to take part in or remain in usual types of research studies, be they about physical or mental health, or they are actively excluded. This means that much of what we know about mental illness is not based on the very people who are worst affected. However, the UK has some of the best data in the world to look at how to prevent mental ill-health and maintain and improve people's mental health. Real-world data, often but not always collected routinely as people go about their everyday lives, offers powerful solutions to overcome these issues. We should use them but at the moment, they are hard to find, applying to use them is tedious, and using them can be hard work. Also, people working on physical health, like heart disease, and mental health tend to work apart, without looking at the links or sharing their work.
What will we do about it?
We want to improve people's mental health by changing the way the NHS, charities, Industry and researchers use and share information that's already out there. We will create a Hub where researchers and others can find and use mental health data to benefit patients and the public and improve care. We are going to work with people, patients and people with personal experience of mental health to understand who they are happy with and trust to use their data, and develop ways people can work together on mental health. We are also going to work with researchers, policy makers, charities and people in industry to understand what sort of data they think can answer the questions they want to ask.We plan to find, list and share where people do not usually look for mental health data- like in trials about heart disease.
We will make it easier for everyone invested in mental health to use data in safe, secure and sometimes new ways. Our Hub is led from across the four nations of the UK so that mental health data will relate to everyone. The Hub will allow future work to happen using data from places outside of usual health care e.g. in new places like schools or from charities.
It will ensure everyone's voice is heard- even those who do not usually take part in research.
We also plan to work closely with others doing the same sort of work as us but in different areas like diabetes so we can understand the links and share learning.
How will this benefit people?
By making it easier to know where the data need may be and how to use it the Hub will support excellent research in cutting-edge ways that will improve the lives of people living with poor mental health in the UK. We have involved patients and the public from the very start and will continue to do so - this is why there are patient and public members who have worked with us on developing this. We have assembled a group of researchers across a number of universities who have lots of experience in doing this sort of work with the view of preventing and improving mental health for all.
What is the problem?
Poor mental health affects everyone at some point in their lives to varying degrees. It is the biggest cause of ill-health and the links, both ways, between physical and mental ill-health are often overlooked. People with mental illness are less likely to take part in or remain in usual types of research studies, be they about physical or mental health, or they are actively excluded. This means that much of what we know about mental illness is not based on the very people who are worst affected. However, the UK has some of the best data in the world to look at how to prevent mental ill-health and maintain and improve people's mental health. Real-world data, often but not always collected routinely as people go about their everyday lives, offers powerful solutions to overcome these issues. We should use them but at the moment, they are hard to find, applying to use them is tedious, and using them can be hard work. Also, people working on physical health, like heart disease, and mental health tend to work apart, without looking at the links or sharing their work.
What will we do about it?
We want to improve people's mental health by changing the way the NHS, charities, Industry and researchers use and share information that's already out there. We will create a Hub where researchers and others can find and use mental health data to benefit patients and the public and improve care. We are going to work with people, patients and people with personal experience of mental health to understand who they are happy with and trust to use their data, and develop ways people can work together on mental health. We are also going to work with researchers, policy makers, charities and people in industry to understand what sort of data they think can answer the questions they want to ask.We plan to find, list and share where people do not usually look for mental health data- like in trials about heart disease.
We will make it easier for everyone invested in mental health to use data in safe, secure and sometimes new ways. Our Hub is led from across the four nations of the UK so that mental health data will relate to everyone. The Hub will allow future work to happen using data from places outside of usual health care e.g. in new places like schools or from charities.
It will ensure everyone's voice is heard- even those who do not usually take part in research.
We also plan to work closely with others doing the same sort of work as us but in different areas like diabetes so we can understand the links and share learning.
How will this benefit people?
By making it easier to know where the data need may be and how to use it the Hub will support excellent research in cutting-edge ways that will improve the lives of people living with poor mental health in the UK. We have involved patients and the public from the very start and will continue to do so - this is why there are patient and public members who have worked with us on developing this. We have assembled a group of researchers across a number of universities who have lots of experience in doing this sort of work with the view of preventing and improving mental health for all.
Technical Summary
Despite the significant health, social and economic burden caused by mental health disorders, research to address them is currently constrained by a number of issues. People who have mental health disorders are socially excluded, less likely to participate in research studies and, if they do, remain in follow-up. Consequently, those with these disorders are inadequately served by consented research studies which under-represent those at greatest need. Moreover, in spite of the huge potential of data-centric health research and the UK's internationally leading status in terms of mental data resources (such as longitudinal and cohort studies, and data platforms), such resources are not yet well coordinated, and mental data research is not well integrated with physical health specialities (despite well-recognised interactions).
Our new Mental Health Data Research Hub will maximise the value of the UK's rich mental health data assets and enable coordinated research, with the ultimate aim of improving lives. The Hub will transform MH research in the UK by providing a central, integrated data infrastructure - with Findable, Accessible, Interoperable, and Reusable - FAIR mental health rich datasets from diverse sources; underpinned by expertise, innovation, responsible-use principles and embedded public participation; for use across Academia, the NHS, Third Sector, Policy Makers and Industry. The Hub infrastructure will be co-located at 4 lead sites in UK covering the four nations. A core activity is indexing and curating data for research, development and innovation across stakeholders. The Hub will continuously, from its onset, catalogue relevant UK mental health rich datasets, including genomics, routine care, cohorts and trials, often through the Catalogue of Mental Health Measures as well as novel data from schools and charities and make them discoverable and therefore useable through the
HDRUK Gateway.
Our new Mental Health Data Research Hub will maximise the value of the UK's rich mental health data assets and enable coordinated research, with the ultimate aim of improving lives. The Hub will transform MH research in the UK by providing a central, integrated data infrastructure - with Findable, Accessible, Interoperable, and Reusable - FAIR mental health rich datasets from diverse sources; underpinned by expertise, innovation, responsible-use principles and embedded public participation; for use across Academia, the NHS, Third Sector, Policy Makers and Industry. The Hub infrastructure will be co-located at 4 lead sites in UK covering the four nations. A core activity is indexing and curating data for research, development and innovation across stakeholders. The Hub will continuously, from its onset, catalogue relevant UK mental health rich datasets, including genomics, routine care, cohorts and trials, often through the Catalogue of Mental Health Measures as well as novel data from schools and charities and make them discoverable and therefore useable through the
HDRUK Gateway.
Organisations
- Swansea University (Lead Research Organisation)
- Kooth plc (Collaboration)
- University of Glasgow (Collaboration)
- Akrivia Health (Collaboration)
- UNIVERSITY OF EDINBURGH (Collaboration)
- MQ Mental Health Research (Collaboration)
- Cardiff University (Collaboration)
- Medicines Discovery Catapult (Collaboration)
- McPin Foundation (Collaboration)
- UNIVERSITY OF SOUTHAMPTON (Collaboration)
- University of Bristol (Collaboration)
- University of Manchester (Collaboration)
- University College London (Collaboration)
- UNIVERSITY OF NOTTINGHAM (Collaboration)
- Academic Medical Center (Collaboration)
- PUBLIC HEALTH ENGLAND (Collaboration)
- South London and Maudsley (SLAM) NHS Foundation Trust (Collaboration)
- Voice of Young People in Care (Collaboration)
- QUEEN'S UNIVERSITY BELFAST (Collaboration)
- DEPARTMENT FOR EDUCATION (Collaboration)
- UNIVERSITY OF CAMBRIDGE (Collaboration)
- UNIVERSITY OF OXFORD (Collaboration)
- University of Sussex (Collaboration)
- Manchester University (Collaboration)
- AIMES Grid Services Ltd (Collaboration)
- SAIL Databank (Collaboration)
- BANGOR UNIVERSITY (Collaboration)
- London School of Hygiene and Tropical Medicine (LSHTM) (Collaboration)
- HEALTH DATA RESEARCH UK (Collaboration)
- SWANSEA UNIVERSITY (Collaboration)
- National Collaborating Centre for Mental Health (NCC MH) (Collaboration)
- Psychiatric Genomics Consortium (PGC) (Collaboration)
- KING'S COLLEGE LONDON (Collaboration)
Publications
Anderson H
(2022)
Antipsychotic monitoring in dementia: quality of completion of antipsychotic monitoring forms in an older adult mental health service.
in BJPsych bulletin
Apergis-Schoute AM
(2024)
Perseveration and Shifting in Obsessive-Compulsive Disorder as a Function of Uncertainty, Punishment, and Serotonergic Medication.
in Biological psychiatry global open science
Arseneault, L.
(2023)
Landscaping International Longitudinal Datasets
Ashdown-Franks G
(2023)
"Triggered by the sound of other runners": An exploration of parkrun mentions in mental health hospital records in the UK
in Mental Health and Physical Activity
Ball EL
(2024)
Childhood intelligence and risk of depression in later-life: A longitudinal data-linkage study.
in SSM - population health
Barbu MC
(2022)
Methylome-wide association study of antidepressant use in Generation Scotland and the Netherlands Twin Register implicates the innate immune system.
in Molecular psychiatry
Bergstedt J
(2024)
Distinct biological signature and modifiable risk factors underlie the comorbidity between major depressive disorder and cardiovascular disease
in Nature Cardiovascular Research
Bernard A
(2023)
Patterns of engagement in a digital mental health service during COVID-19: a cohort study for children and young people
in Frontiers in Psychiatry
| Description | APPG Medical Research RoundTable on Mental Health Inequalities |
| Geographic Reach | National |
| Policy Influence Type | Participation in a guidance/advisory committee |
| Description | Evidence cited in Mental Health in Northern Ireland Fundamental Facts 2023 |
| Geographic Reach | National |
| Policy Influence Type | Citation in other policy documents |
| URL | https://www.mentalhealthchampion-ni.org.uk/files/mentalhealthchampionni/2023-10/Mental%20Health%20in... |
| Description | Invited to sit on the Welsh Government's newly formed Oversight & Delivery Board, as part of work carried out by the Mental Health and Wellbeing in Education branch. |
| Geographic Reach | Local/Municipal/Regional |
| Policy Influence Type | Participation in a guidance/advisory committee |
| Description | MHRA consideration of oxybutinin OTC |
| Geographic Reach | National |
| Policy Influence Type | Contribution to a national consultation/review |
| Impact | Improvement in safe prescribing. |
| URL | https://www.gov.uk/government/news/mhra-maintains-prescription-only-status-of-aquiette-25mg-tablets-... |
| Description | Manchester BRC Scientific Advisory Board |
| Geographic Reach | Local/Municipal/Regional |
| Policy Influence Type | Participation in a guidance/advisory committee |
| Impact | The BRC has grown clinical research infrastructure and the training of clinical and clinical research staff in the wider Manchester region (from South Cumbria to Stockport). |
| Description | NHSE appropriate use of antipsychotics in dementia toolkit |
| Geographic Reach | National |
| Policy Influence Type | Contribution to new or improved professional practice |
| Impact | Supporting information to improve safe prescribing. |
| URL | https://www.england.nhs.uk/london/wp-content/uploads/sites/8/2022/10/Antipsychotic-Prescribing-Toolk... |
| Description | PRENCOG Scientific Advisory Committee Chair |
| Geographic Reach | National |
| Policy Influence Type | Influenced training of practitioners or researchers |
| Impact | The PRENCOG study has lead to imporvmenets in capacity building and staff training throughout the PRENCOG study investigators' insitutions and collaborators. |
| Description | UK National Institute for Health and Care Excellence (NICE) Diagnostics Advisory Committee: 6-lead electrocardiogram (ECG) for monitoring cardiac health in people having antipsychotic medication (DAP62/HTE10) |
| Geographic Reach | National |
| Policy Influence Type | Participation in a guidance/advisory committee |
| URL | https://www.nice.org.uk/guidance/hte10 |
| Description | An investigation of the epidemiology of falls, fractures and outcomes among people with psychotic and affective disorders |
| Amount | £155,674 (GBP) |
| Funding ID | ICA-CL-2017-03-001 |
| Organisation | National Institute for Health Research |
| Sector | Public |
| Country | United Kingdom |
| Start | 05/2018 |
| End | 05/2021 |
| Description | CHECKPOINT: Finding immune & metabolic pathways to SMI |
| Amount | £3,499,251 (GBP) |
| Organisation | Medical Research Council (MRC) |
| Sector | Public |
| Country | United Kingdom |
| Start | 03/2024 |
| End | 02/2028 |
| Description | DETERMIND: DETERMinants of quality of life, care and costs, and consequences of INequalities in people with Dementia and their family carers |
| Amount | £4,087,246 (GBP) |
| Funding ID | ES/S010351/1 |
| Organisation | Economic and Social Research Council |
| Sector | Public |
| Country | United Kingdom |
| Start | 01/2019 |
| End | 12/2024 |
| Description | Determinants of MLTCs among young adults with mental disorders: a data-linkage study |
| Amount | £142,254 (GBP) |
| Organisation | Guy’s & St Thomas’ Charity |
| Sector | Charity/Non Profit |
| Country | United Kingdom |
| Start | 02/2020 |
| End | 01/2022 |
| Description | Edinburgh Molecular Mechanisms Cluster |
| Amount | £53,131,306 (GBP) |
| Funding ID | MR/Y030877/1 |
| Organisation | Medical Research Council (MRC) |
| Sector | Public |
| Country | United Kingdom |
| Start | 03/2024 |
| End | 02/2028 |
| Description | Empowering Better End of life Dementia Care (EMBED-Care Programme) |
| Amount | £3,957,285 (GBP) |
| Funding ID | ES/S010327/1 |
| Organisation | Economic and Social Research Council |
| Sector | Public |
| Country | United Kingdom |
| Start | 01/2019 |
| End | 12/2024 |
| Description | Empowering patients and the public with skills and knowledge for involvement in translational research |
| Amount | £14,393 (GBP) |
| Funding ID | Part of Wellcome Trust Institutional Translational Partnership Award funding, 222062/Z/20/Z |
| Organisation | Cambridge Academy of Therapeutic Sciences |
| Sector | Academic/University |
| Country | United Kingdom |
| Start | 03/2024 |
| End | 12/2024 |
| Description | Exploiting genomic approaches to identify the environmental basis of depression |
| Amount | £2,530,384 (GBP) |
| Funding ID | 220857 |
| Organisation | Wellcome Trust |
| Sector | Charity/Non Profit |
| Country | United Kingdom |
| Start | 01/2021 |
| End | 12/2025 |
| Description | FAIR TREATMENT: Federated analytics and AI Research across TREs for AdolescenT MENTal health |
| Amount | £342,708 (GBP) |
| Funding ID | MC_PC_21025 |
| Organisation | Medical Research Council (MRC) |
| Sector | Public |
| Country | United Kingdom |
| Start | 01/2022 |
| End | 08/2022 |
| Description | Improving transparency of processes for accessing health data for research purposes |
| Amount | £14,626 (GBP) |
| Funding ID | HDRUK2023.0465 |
| Organisation | Health Data Research UK |
| Sector | Private |
| Country | United Kingdom |
| Start | 09/2023 |
| End | 03/2024 |
| Description | International longitudinal datasets made discoverable with an interactive online platform (discretionary fund) |
| Amount | £1,279,313 (GBP) |
| Organisation | Wellcome Trust |
| Sector | Charity/Non Profit |
| Country | United Kingdom |
| Start | 09/2023 |
| End | 09/2028 |
| Description | Lambeth Health Determinants Research and Evaluation Network (Lambeth HEART) |
| Amount | £5,106,832 (GBP) |
| Funding ID | NIHR151065 |
| Organisation | National Institute for Health Research |
| Sector | Public |
| Country | United Kingdom |
| Start | 09/2022 |
| End | 09/2027 |
| Description | Landscaping to identify the most promising longitudinal datasets for depression, anxiety and psychosis research. |
| Amount | £507,172 (GBP) |
| Organisation | Wellcome Trust |
| Sector | Charity/Non Profit |
| Country | United Kingdom |
| Start | 08/2022 |
| End | 08/2023 |
| Description | Longitudinal changes in cognitive impairment for patients with Schizophrenia |
| Amount | £223,400 (GBP) |
| Organisation | Takeda Pharmaceutical Company |
| Sector | Private |
| Country | Japan |
| Start | 02/2019 |
| End | 01/2022 |
| Description | Metabolism in Psychiatry |
| Amount | £3,200,000 (GBP) |
| Organisation | Medical Research Council (MRC) |
| Sector | Public |
| Country | United Kingdom |
| Start | 03/2024 |
| End | 02/2028 |
| Description | NIHR Cambridge Biomedical Research Centre |
| Amount | £86,200,000 (GBP) |
| Funding ID | NIHR203312 |
| Organisation | National Institute for Health Research |
| Sector | Public |
| Country | United Kingdom |
| Start | 12/2022 |
| End | 11/2027 |
| Description | Patterns of Multiple Long-Term Vascular Conditions in Lambeth and Southwark |
| Amount | £128,369 (GBP) |
| Organisation | Guy’s & St Thomas’ Charity |
| Sector | Charity/Non Profit |
| Country | United Kingdom |
| Start | 03/2020 |
| End | 09/2021 |
| Description | SOCIAL AND ECONOMIC PREDICTORS FOR THE COURSE AND PROGNOSIS OF THE SEVERE MENTAL DISORDERS- THE SEP-MD DATA LINKAGE STUDY |
| Amount | £161,761 (GBP) |
| Funding ID | ES/S002715/1 |
| Organisation | Economic and Social Research Council |
| Sector | Public |
| Country | United Kingdom |
| Start | 01/2020 |
| End | 07/2023 |
| Description | The eLIXIR (early LIFe data Cross-Linkage in Research) Cohort. |
| Amount | £1,486,392 (GBP) |
| Funding ID | MR/X009742/1 |
| Organisation | Medical Research Council (MRC) |
| Sector | Public |
| Country | United Kingdom |
| Start | 03/2023 |
| End | 03/2028 |
| Description | UKRI Future Leaders Fellowship (PI = Anna Moore): Transforming child mental health: co-designing, building and evaluating a digitally enabled, personalised, prevention pathway |
| Amount | £2,464,008 (GBP) |
| Organisation | United Kingdom Research and Innovation |
| Sector | Public |
| Country | United Kingdom |
| Start | 02/2024 |
| End | 02/2028 |
| Description | Understanding the causal mechanisms of antidepressant exposure and response |
| Amount | £4,715,101 (GBP) |
| Funding ID | 226770/Z/22/Z |
| Organisation | Wellcome Trust |
| Sector | Charity/Non Profit |
| Country | United Kingdom |
| Start | 07/2023 |
| End | 07/2028 |
| Description | Using smartphone-based personal sensing to understand and predict risk of psychotic relapse at the individual level |
| Amount | £754,342 (GBP) |
| Organisation | Medical Research Council (MRC) |
| Sector | Public |
| Country | United Kingdom |
| Start | 09/2019 |
| End | 09/2023 |
| Description | Violence, Health and Society: VISION |
| Amount | £7,128,297 (GBP) |
| Funding ID | MR/V049879/1 |
| Organisation | Medical Research Council (MRC) |
| Sector | Public |
| Country | United Kingdom |
| Start | 09/2021 |
| End | 09/2026 |
| Description | What CAMHS interventions predict positive outcomes for which young people with a social worker: a mixed-methods study of clinical support and cost-effectiveness utilising linked operational data |
| Amount | £1,316,008 (GBP) |
| Organisation | National Institute for Health Research |
| Sector | Public |
| Country | United Kingdom |
| Start | 05/2022 |
| End | 05/2026 |
| Title | A library of natural language processing algorithms to support mental healthcare text analytics |
| Description | Through the MRC Mental Health Data Pathfinder award to KCL and supported by the subsequent DATAMIND hub and VISION consortium, we have produced comprehensive online, open-access catalogues, regularly updated on natural language processing algorithms currently supporting research using text fields from electronic mental healthcare records. The functionality of the algorithms has been made available on request through the Mental Health - Text Analytics Cloud (MH-TAC, previously 'GATE Cloud') platform, also developed through the KCL Pathfinder award and DATAMIND hub (and described elsewhere). |
| Type Of Material | Improvements to research infrastructure |
| Year Produced | 2020 |
| Provided To Others? | Yes |
| Impact | The algorithms are widely used in CRIS research and have increasingly been run over text from other NHS Mental Health Trusts. |
| URL | https://www.maudsleybrc.nihr.ac.uk/facilities/clinical-record-interactive-search-cris/cris-natural-l... |
| Title | A platform for enabling sharing of healthcare natural language processing functionality (MH-TAC) |
| Description | The Mental Health Text Analytics Cloud (MH-TAC) has been developed as a within-NHS platform to facilitate the sharing of natural language processing algorithms, including but not restricted to the large catalogue developed and maintained at the NIHR Maudsley Biomedical Research Centre. |
| Type Of Material | Improvements to research infrastructure |
| Year Produced | 2023 |
| Provided To Others? | Yes |
| Impact | Successful prototype development. In use by three separate organisations to date. |
| Title | De-identified Bayesian personal identity matching for record linkage despite errors |
| Description | Technique for linking records about people (a) without a common person-unique identifier such as an NHS number, but ultimately using names, dates of birth, and so forth; and (b) in de-identified fashion, so none of those identifiers are visible at linkage (irreversibly encrypted versions are used). Currently under review but available as a preprint. |
| Type Of Material | Improvements to research infrastructure |
| Year Produced | 2022 |
| Provided To Others? | Yes |
| Impact | A candidate method to replace some current national data linkage schemes using identifiable data (and NHS Act Section 251 approval), but peer review awaited. |
| URL | https://doi.org/10.21203/rs.3.rs-1929135/v1 |
| Title | Enhanced natural language processing algorithm for ascertaining violence from mental healthcare text records |
| Description | Natural language processing algorithms developed on the Maudsley CRIS platform for use on mental healthcare records text include an updated 'Version 2' suite of algorithms for ascertaining violence victimisation and perpetration, with improved ascertainment of violence victimisation vs. perpetration, setting (e.g., domestic), temporality, and nature (physical, sexual, emotional, financial). This work was enabled through funding from the VISION consortium. |
| Type Of Material | Improvements to research infrastructure |
| Year Produced | 2024 |
| Provided To Others? | Yes |
| Impact | This has only just been developed but is being actively deployed in analyses. |
| URL | https://www.maudsleybrc.nihr.ac.uk/facilities/clinical-record-interactive-search-cris/cris-natural-l... |
| Title | Recently developed natural language processing algorithms |
| Description | Natural language processing algorithms have been developed and/or first applied this year to ascertain recorded instances of violence in mental healthcare, and co-occurring physical health conditions (21 to date). In addition, novel characterisation of psychomotor agitation/retardation is now possible. Finally, a range of 'long Covid' symptoms can now be ascertained - developed in response to PPIE. |
| Type Of Material | Improvements to research infrastructure |
| Year Produced | 2022 |
| Provided To Others? | Yes |
| Impact | Successful application in a range of completed research projects using mental healthcare data. |
| URL | https://www.maudsleybrc.nihr.ac.uk/facilities/clinical-record-interactive-search-cris/cris-natural-l... |
| Title | Linkage between CRIS mental healthcare data and HFEA data |
| Description | This links mental healthcare data with HFEA data on fertility assessment and treatment, allowing (for the first time) investigations of mental health inequalities in infertility investigation and treatment to be evaluated. |
| Type Of Material | Database/Collection of data |
| Year Produced | 2022 |
| Provided To Others? | Yes |
| Impact | These are still rather early days following the linkage. |
| URL | https://www.maudsleybrc.nihr.ac.uk/facilities/clinical-record-interactive-search-cris/cris-data-link... |
| Title | Linkage between CRIS mental healthcare data and the HIV and AIDS Reporting Service |
| Description | A linkage between mental healthcare data and HIV reporting data. This enables (for the first time) mental health inequalities in HIV investigation and/or management to be investigated. |
| Type Of Material | Database/Collection of data |
| Year Produced | 2022 |
| Provided To Others? | Yes |
| Impact | At relatively early stages of use. A descriptive paper will be in the public domain shortly. |
| Title | Research data supporting "Public opinion on sharing data from health services for clinical and research purposes without explicit consent: an anonymous online survey in the UK" |
| Description | Anonymised data from a 2020 UK survey of public opinion about sharing NHS health data for clinical and research purposes. Study registration https://doi.org/10.1186/ISRCTN37444142 . Preprint at https://doi.org/10.1101/2021.07.19.21260635 . Final paper in BMJ Open at https://doi.org/bmjopen-2021-057579 . |
| Type Of Material | Database/Collection of data |
| Year Produced | 2022 |
| Provided To Others? | Yes |
| URL | https://www.repository.cam.ac.uk/handle/1810/336099 |
| Description | Amsterdam Cohort Hub (ACH) - SAB member |
| Organisation | Academic Medical Center |
| Country | Netherlands |
| Sector | Academic/University |
| PI Contribution | Attend meetings to discuss progress and future plans |
| Collaborator Contribution | Will facilitate connection with longitudinal datasets from the NL |
| Impact | No yet |
| Start Year | 2024 |
| Description | Centre for Longitudinal Studies (CLS) - SAB member |
| Organisation | University College London |
| Country | United Kingdom |
| Sector | Academic/University |
| PI Contribution | Attend online meetings to discuss strategic direction and future funding |
| Collaborator Contribution | Facilitate connections with other longitudinal studies |
| Impact | None yet |
| Start Year | 2023 |
| Description | Collaboration with Voice of Young People in Care (VOYPIC) - ongoing |
| Organisation | Voice of Young People in Care |
| Country | United Kingdom |
| Sector | Charity/Non Profit |
| PI Contribution | The research team have partnered with VOYPIC to involve care experienced young people in RB2 related research |
| Collaborator Contribution | VOYPIC co-facilitate the Data Research Advisors Group with DATAMIND researchers at Queen's University Belfast (QUB). The Data Research Advisers Group (DRAG) provides a platform and safe space for QUB researchers and experts by experience to work in equal partnership to co-produce research that uses administrative data to better understand the experiences and mental health outcomes of children and young people known to social services in Northern Ireland (NI). |
| Impact | There have been 6 workshops held to date with experts by experience in their role as Data Research Advisors. This collaboration with VOYPIC and the young people has led to a number of high impact outputs such as the publication of a young person's version of a research paper, an ADR UK blog post and a pilot internship program where a care experienced young person worked with ADRC NI for two months. |
| Start Year | 2022 |
| Description | Collaboration with Voice of Young People in Care (VOYPIC) - ongoing |
| Organisation | Voice of Young People in Care |
| Country | United Kingdom |
| Sector | Charity/Non Profit |
| PI Contribution | The research team have partnered with VOYPIC to involve care experienced young people in RB2 related research |
| Collaborator Contribution | VOYPIC co-facilitate the Data Research Advisors Group with DATAMIND researchers at Queen's University Belfast (QUB). The Data Research Advisers Group (DRAG) provides a platform and safe space for QUB researchers and experts by experience to work in equal partnership to co-produce research that uses administrative data to better understand the experiences and mental health outcomes of children and young people known to social services in Northern Ireland (NI). |
| Impact | There have been 6 workshops held to date with experts by experience in their role as Data Research Advisors. This collaboration with VOYPIC and the young people has led to a number of high impact outputs such as the publication of a young person's version of a research paper, an ADR UK blog post and a pilot internship program where a care experienced young person worked with ADRC NI for two months. |
| Start Year | 2022 |
| Description | Collaboration with the Medicines Discovery Catapult |
| Organisation | Medicines Discovery Catapult |
| Country | United Kingdom |
| Sector | Private |
| PI Contribution | We have established a colaboration with the Medicines Discovery Catapult through regular participation in DATAMIND's Industrial forum initially. This led to a formal partnership through a Wellcome Trust funded activities that seeks to better understand the mechanisms of antidepressants |
| Collaborator Contribution | The Catapult has brokered trusted relationships between DATAMIND, specific DATAMIND investigators and collaborators and the pharmaceutical and biotech industries. They have developed a mechansism to search for and retrieve data from unpublished RCTs of psychiatric medications. In our Wellcome award, we have partnered with them to identify published and unpublished studies of antidepressants and antidepressant response, where there is genetic or other data available |
| Impact | Grant funding c£4m from the Wellcome Trust, further ongoing participation in the DATAMIND (renewal) |
| Start Year | 2023 |
| Description | DATAMIND consortium |
| Organisation | AIMES Grid Services Ltd |
| Country | United Kingdom |
| Sector | Private |
| PI Contribution | Cambridge contribution: leading patient/public involvement for DATAMIND, along with technical and epidemiological elements. |
| Collaborator Contribution | Other core activities (FAIR curated data, business development/sustainability, workforce capacity/training/development) and "road builder" projects. |
| Impact | See ResearchFish for MRC grant MR/W014386/1 |
| Start Year | 2021 |
| Description | DATAMIND consortium |
| Organisation | Akrivia Health |
| Country | United Kingdom |
| Sector | Hospitals |
| PI Contribution | Cambridge contribution: leading patient/public involvement for DATAMIND, along with technical and epidemiological elements. |
| Collaborator Contribution | Other core activities (FAIR curated data, business development/sustainability, workforce capacity/training/development) and "road builder" projects. |
| Impact | See ResearchFish for MRC grant MR/W014386/1 |
| Start Year | 2021 |
| Description | DATAMIND consortium |
| Organisation | Bangor University |
| Country | United Kingdom |
| Sector | Academic/University |
| PI Contribution | Cambridge contribution: leading patient/public involvement for DATAMIND, along with technical and epidemiological elements. |
| Collaborator Contribution | Other core activities (FAIR curated data, business development/sustainability, workforce capacity/training/development) and "road builder" projects. |
| Impact | See ResearchFish for MRC grant MR/W014386/1 |
| Start Year | 2021 |
| Description | DATAMIND consortium |
| Organisation | Cardiff University |
| Country | United Kingdom |
| Sector | Academic/University |
| PI Contribution | Cambridge contribution: leading patient/public involvement for DATAMIND, along with technical and epidemiological elements. |
| Collaborator Contribution | Other core activities (FAIR curated data, business development/sustainability, workforce capacity/training/development) and "road builder" projects. |
| Impact | See ResearchFish for MRC grant MR/W014386/1 |
| Start Year | 2021 |
| Description | DATAMIND consortium |
| Organisation | Health Data Research UK |
| Country | United Kingdom |
| Sector | Private |
| PI Contribution | Cambridge contribution: leading patient/public involvement for DATAMIND, along with technical and epidemiological elements. |
| Collaborator Contribution | Other core activities (FAIR curated data, business development/sustainability, workforce capacity/training/development) and "road builder" projects. |
| Impact | See ResearchFish for MRC grant MR/W014386/1 |
| Start Year | 2021 |
| Description | DATAMIND consortium |
| Organisation | King's College London |
| Department | Institute of Psychiatry, Psychology & Neuroscience |
| Country | United Kingdom |
| Sector | Academic/University |
| PI Contribution | Cambridge contribution: leading patient/public involvement for DATAMIND, along with technical and epidemiological elements. |
| Collaborator Contribution | Other core activities (FAIR curated data, business development/sustainability, workforce capacity/training/development) and "road builder" projects. |
| Impact | See ResearchFish for MRC grant MR/W014386/1 |
| Start Year | 2021 |
| Description | DATAMIND consortium |
| Organisation | Kooth Plc |
| Country | United Kingdom |
| Sector | Private |
| PI Contribution | Cambridge contribution: leading patient/public involvement for DATAMIND, along with technical and epidemiological elements. |
| Collaborator Contribution | Other core activities (FAIR curated data, business development/sustainability, workforce capacity/training/development) and "road builder" projects. |
| Impact | See ResearchFish for MRC grant MR/W014386/1 |
| Start Year | 2021 |
| Description | DATAMIND consortium |
| Organisation | MQ Mental Health Research |
| Country | United Kingdom |
| Sector | Charity/Non Profit |
| PI Contribution | Cambridge contribution: leading patient/public involvement for DATAMIND, along with technical and epidemiological elements. |
| Collaborator Contribution | Other core activities (FAIR curated data, business development/sustainability, workforce capacity/training/development) and "road builder" projects. |
| Impact | See ResearchFish for MRC grant MR/W014386/1 |
| Start Year | 2021 |
| Description | DATAMIND consortium |
| Organisation | Manchester University |
| Country | United States |
| Sector | Academic/University |
| PI Contribution | Cambridge contribution: leading patient/public involvement for DATAMIND, along with technical and epidemiological elements. |
| Collaborator Contribution | Other core activities (FAIR curated data, business development/sustainability, workforce capacity/training/development) and "road builder" projects. |
| Impact | See ResearchFish for MRC grant MR/W014386/1 |
| Start Year | 2021 |
| Description | DATAMIND consortium |
| Organisation | McPin Foundation |
| Country | United Kingdom |
| Sector | Charity/Non Profit |
| PI Contribution | Cambridge contribution: leading patient/public involvement for DATAMIND, along with technical and epidemiological elements. |
| Collaborator Contribution | Other core activities (FAIR curated data, business development/sustainability, workforce capacity/training/development) and "road builder" projects. |
| Impact | See ResearchFish for MRC grant MR/W014386/1 |
| Start Year | 2021 |
| Description | DATAMIND consortium |
| Organisation | National Collaborating Centre for Mental Health (NCC MH) |
| Country | United Kingdom |
| Sector | Charity/Non Profit |
| PI Contribution | Cambridge contribution: leading patient/public involvement for DATAMIND, along with technical and epidemiological elements. |
| Collaborator Contribution | Other core activities (FAIR curated data, business development/sustainability, workforce capacity/training/development) and "road builder" projects. |
| Impact | See ResearchFish for MRC grant MR/W014386/1 |
| Start Year | 2021 |
| Description | DATAMIND consortium |
| Organisation | Psychiatric Genomics Consortium (PGC) |
| Country | Global |
| Sector | Learned Society |
| PI Contribution | Cambridge contribution: leading patient/public involvement for DATAMIND, along with technical and epidemiological elements. |
| Collaborator Contribution | Other core activities (FAIR curated data, business development/sustainability, workforce capacity/training/development) and "road builder" projects. |
| Impact | See ResearchFish for MRC grant MR/W014386/1 |
| Start Year | 2021 |
| Description | DATAMIND consortium |
| Organisation | Queen's University Belfast |
| Country | United Kingdom |
| Sector | Academic/University |
| PI Contribution | Cambridge contribution: leading patient/public involvement for DATAMIND, along with technical and epidemiological elements. |
| Collaborator Contribution | Other core activities (FAIR curated data, business development/sustainability, workforce capacity/training/development) and "road builder" projects. |
| Impact | See ResearchFish for MRC grant MR/W014386/1 |
| Start Year | 2021 |
| Description | DATAMIND consortium |
| Organisation | SAIL Databank |
| Country | United Kingdom |
| Sector | Public |
| PI Contribution | Cambridge contribution: leading patient/public involvement for DATAMIND, along with technical and epidemiological elements. |
| Collaborator Contribution | Other core activities (FAIR curated data, business development/sustainability, workforce capacity/training/development) and "road builder" projects. |
| Impact | See ResearchFish for MRC grant MR/W014386/1 |
| Start Year | 2021 |
| Description | DATAMIND consortium |
| Organisation | Swansea University |
| Country | United Kingdom |
| Sector | Academic/University |
| PI Contribution | Cambridge contribution: leading patient/public involvement for DATAMIND, along with technical and epidemiological elements. |
| Collaborator Contribution | Other core activities (FAIR curated data, business development/sustainability, workforce capacity/training/development) and "road builder" projects. |
| Impact | See ResearchFish for MRC grant MR/W014386/1 |
| Start Year | 2021 |
| Description | DATAMIND consortium |
| Organisation | University College London |
| Country | United Kingdom |
| Sector | Academic/University |
| PI Contribution | Cambridge contribution: leading patient/public involvement for DATAMIND, along with technical and epidemiological elements. |
| Collaborator Contribution | Other core activities (FAIR curated data, business development/sustainability, workforce capacity/training/development) and "road builder" projects. |
| Impact | See ResearchFish for MRC grant MR/W014386/1 |
| Start Year | 2021 |
| Description | DATAMIND consortium |
| Organisation | University of Bristol |
| Country | United Kingdom |
| Sector | Academic/University |
| PI Contribution | Cambridge contribution: leading patient/public involvement for DATAMIND, along with technical and epidemiological elements. |
| Collaborator Contribution | Other core activities (FAIR curated data, business development/sustainability, workforce capacity/training/development) and "road builder" projects. |
| Impact | See ResearchFish for MRC grant MR/W014386/1 |
| Start Year | 2021 |
| Description | DATAMIND consortium |
| Organisation | University of Edinburgh |
| Country | United Kingdom |
| Sector | Academic/University |
| PI Contribution | Cambridge contribution: leading patient/public involvement for DATAMIND, along with technical and epidemiological elements. |
| Collaborator Contribution | Other core activities (FAIR curated data, business development/sustainability, workforce capacity/training/development) and "road builder" projects. |
| Impact | See ResearchFish for MRC grant MR/W014386/1 |
| Start Year | 2021 |
| Description | DATAMIND consortium |
| Organisation | University of Glasgow |
| Country | United Kingdom |
| Sector | Academic/University |
| PI Contribution | Cambridge contribution: leading patient/public involvement for DATAMIND, along with technical and epidemiological elements. |
| Collaborator Contribution | Other core activities (FAIR curated data, business development/sustainability, workforce capacity/training/development) and "road builder" projects. |
| Impact | See ResearchFish for MRC grant MR/W014386/1 |
| Start Year | 2021 |
| Description | DATAMIND network |
| Organisation | AIMES Grid Services Ltd |
| Country | United Kingdom |
| Sector | Private |
| PI Contribution | I co-direct this initiative and my research team is responsible for its project management, as well as leading a workpackage |
| Collaborator Contribution | The partners contribute to the facilitation of mental health data science nationally. |
| Impact | It's a little early for outputs, as it only commenced in Sep 2021. The disciplines involved are epidemiology, psychiatry, public health, computer science, project management, administration. |
| Start Year | 2021 |
| Description | DATAMIND network |
| Organisation | Akrivia Health |
| Country | United Kingdom |
| Sector | Hospitals |
| PI Contribution | I co-direct this initiative and my research team is responsible for its project management, as well as leading a workpackage |
| Collaborator Contribution | The partners contribute to the facilitation of mental health data science nationally. |
| Impact | It's a little early for outputs, as it only commenced in Sep 2021. The disciplines involved are epidemiology, psychiatry, public health, computer science, project management, administration. |
| Start Year | 2021 |
| Description | DATAMIND network |
| Organisation | Cardiff University |
| Country | United Kingdom |
| Sector | Academic/University |
| PI Contribution | I co-direct this initiative and my research team is responsible for its project management, as well as leading a workpackage |
| Collaborator Contribution | The partners contribute to the facilitation of mental health data science nationally. |
| Impact | It's a little early for outputs, as it only commenced in Sep 2021. The disciplines involved are epidemiology, psychiatry, public health, computer science, project management, administration. |
| Start Year | 2021 |
| Description | DATAMIND network |
| Organisation | MQ Mental Health Research |
| Country | United Kingdom |
| Sector | Charity/Non Profit |
| PI Contribution | I co-direct this initiative and my research team is responsible for its project management, as well as leading a workpackage |
| Collaborator Contribution | The partners contribute to the facilitation of mental health data science nationally. |
| Impact | It's a little early for outputs, as it only commenced in Sep 2021. The disciplines involved are epidemiology, psychiatry, public health, computer science, project management, administration. |
| Start Year | 2021 |
| Description | DATAMIND network |
| Organisation | McPin Foundation |
| Country | United Kingdom |
| Sector | Charity/Non Profit |
| PI Contribution | I co-direct this initiative and my research team is responsible for its project management, as well as leading a workpackage |
| Collaborator Contribution | The partners contribute to the facilitation of mental health data science nationally. |
| Impact | It's a little early for outputs, as it only commenced in Sep 2021. The disciplines involved are epidemiology, psychiatry, public health, computer science, project management, administration. |
| Start Year | 2021 |
| Description | DATAMIND network |
| Organisation | Queen's University Belfast |
| Country | United Kingdom |
| Sector | Academic/University |
| PI Contribution | I co-direct this initiative and my research team is responsible for its project management, as well as leading a workpackage |
| Collaborator Contribution | The partners contribute to the facilitation of mental health data science nationally. |
| Impact | It's a little early for outputs, as it only commenced in Sep 2021. The disciplines involved are epidemiology, psychiatry, public health, computer science, project management, administration. |
| Start Year | 2021 |
| Description | DATAMIND network |
| Organisation | Swansea University |
| Department | Swansea University Medical School |
| Country | United Kingdom |
| Sector | Academic/University |
| PI Contribution | I co-direct this initiative and my research team is responsible for its project management, as well as leading a workpackage |
| Collaborator Contribution | The partners contribute to the facilitation of mental health data science nationally. |
| Impact | It's a little early for outputs, as it only commenced in Sep 2021. The disciplines involved are epidemiology, psychiatry, public health, computer science, project management, administration. |
| Start Year | 2021 |
| Description | DATAMIND network |
| Organisation | University College London |
| Country | United Kingdom |
| Sector | Academic/University |
| PI Contribution | I co-direct this initiative and my research team is responsible for its project management, as well as leading a workpackage |
| Collaborator Contribution | The partners contribute to the facilitation of mental health data science nationally. |
| Impact | It's a little early for outputs, as it only commenced in Sep 2021. The disciplines involved are epidemiology, psychiatry, public health, computer science, project management, administration. |
| Start Year | 2021 |
| Description | DATAMIND network |
| Organisation | University of Bristol |
| Country | United Kingdom |
| Sector | Academic/University |
| PI Contribution | I co-direct this initiative and my research team is responsible for its project management, as well as leading a workpackage |
| Collaborator Contribution | The partners contribute to the facilitation of mental health data science nationally. |
| Impact | It's a little early for outputs, as it only commenced in Sep 2021. The disciplines involved are epidemiology, psychiatry, public health, computer science, project management, administration. |
| Start Year | 2021 |
| Description | DATAMIND network |
| Organisation | University of Cambridge |
| Country | United Kingdom |
| Sector | Academic/University |
| PI Contribution | I co-direct this initiative and my research team is responsible for its project management, as well as leading a workpackage |
| Collaborator Contribution | The partners contribute to the facilitation of mental health data science nationally. |
| Impact | It's a little early for outputs, as it only commenced in Sep 2021. The disciplines involved are epidemiology, psychiatry, public health, computer science, project management, administration. |
| Start Year | 2021 |
| Description | DATAMIND network |
| Organisation | University of Edinburgh |
| Country | United Kingdom |
| Sector | Academic/University |
| PI Contribution | I co-direct this initiative and my research team is responsible for its project management, as well as leading a workpackage |
| Collaborator Contribution | The partners contribute to the facilitation of mental health data science nationally. |
| Impact | It's a little early for outputs, as it only commenced in Sep 2021. The disciplines involved are epidemiology, psychiatry, public health, computer science, project management, administration. |
| Start Year | 2021 |
| Description | DATAMIND network |
| Organisation | University of Glasgow |
| Country | United Kingdom |
| Sector | Academic/University |
| PI Contribution | I co-direct this initiative and my research team is responsible for its project management, as well as leading a workpackage |
| Collaborator Contribution | The partners contribute to the facilitation of mental health data science nationally. |
| Impact | It's a little early for outputs, as it only commenced in Sep 2021. The disciplines involved are epidemiology, psychiatry, public health, computer science, project management, administration. |
| Start Year | 2021 |
| Description | DATAMIND network |
| Organisation | University of Manchester |
| Country | United Kingdom |
| Sector | Academic/University |
| PI Contribution | I co-direct this initiative and my research team is responsible for its project management, as well as leading a workpackage |
| Collaborator Contribution | The partners contribute to the facilitation of mental health data science nationally. |
| Impact | It's a little early for outputs, as it only commenced in Sep 2021. The disciplines involved are epidemiology, psychiatry, public health, computer science, project management, administration. |
| Start Year | 2021 |
| Description | DATAMIND network |
| Organisation | University of Oxford |
| Country | United Kingdom |
| Sector | Academic/University |
| PI Contribution | I co-direct this initiative and my research team is responsible for its project management, as well as leading a workpackage |
| Collaborator Contribution | The partners contribute to the facilitation of mental health data science nationally. |
| Impact | It's a little early for outputs, as it only commenced in Sep 2021. The disciplines involved are epidemiology, psychiatry, public health, computer science, project management, administration. |
| Start Year | 2021 |
| Description | INSPIRE: Mental Health Project - SAB member |
| Organisation | London School of Hygiene and Tropical Medicine (LSHTM) |
| Country | United Kingdom |
| Sector | Academic/University |
| PI Contribution | Member of their SAB and attend regular meetings to discuss progress and future direction |
| Collaborator Contribution | Collaborate on the Landscaping project for identifying longitudinal datasets from Africa and establish connections |
| Impact | None so far |
| Start Year | 2023 |
| Description | King's Pathfinder network |
| Organisation | Cardiff University |
| Country | United Kingdom |
| Sector | Academic/University |
| PI Contribution | Through KCL's MRC Mental Health Data Pathfinder award, we have been able to assemble this diverse network of partners to enable the development of mental healthcare informatics resources at a national level. |
| Collaborator Contribution | We are working actively with University College London and University of Cambridge, and increasingly with University of Oxford on collaborative initiatives using CRIS and CRIS-like systems to provide research output from electronic health records data. We have active collaborations with Public Health England and the Department for Education on data linkages using CRIS, as data suppliers. |
| Impact | 1. A database has now been assembled for analysis linking our CRIS data with National Cancer Registry data (via Public Health England). 2. The GATE-Cloud natural language processing resource has been successfully set up in Azure (through collaboration with University of Cambridge). 3. External funding has been sourced for collaborative CRIS work (with University of Oxford) involving derivation of new data via KCL-hosted algorithms (and GATE-Cloud - see (2) above). The collaboration is multi-disciplinary involving clinical and non-clinical academic staff from Psychiatry, Epidemiology, Informatics, Computer Science, as well as colleagues in government bodies. |
| Start Year | 2018 |
| Description | King's Pathfinder network |
| Organisation | Department for Education |
| Country | United Kingdom |
| Sector | Public |
| PI Contribution | Through KCL's MRC Mental Health Data Pathfinder award, we have been able to assemble this diverse network of partners to enable the development of mental healthcare informatics resources at a national level. |
| Collaborator Contribution | We are working actively with University College London and University of Cambridge, and increasingly with University of Oxford on collaborative initiatives using CRIS and CRIS-like systems to provide research output from electronic health records data. We have active collaborations with Public Health England and the Department for Education on data linkages using CRIS, as data suppliers. |
| Impact | 1. A database has now been assembled for analysis linking our CRIS data with National Cancer Registry data (via Public Health England). 2. The GATE-Cloud natural language processing resource has been successfully set up in Azure (through collaboration with University of Cambridge). 3. External funding has been sourced for collaborative CRIS work (with University of Oxford) involving derivation of new data via KCL-hosted algorithms (and GATE-Cloud - see (2) above). The collaboration is multi-disciplinary involving clinical and non-clinical academic staff from Psychiatry, Epidemiology, Informatics, Computer Science, as well as colleagues in government bodies. |
| Start Year | 2018 |
| Description | King's Pathfinder network |
| Organisation | Public Health England |
| Country | United Kingdom |
| Sector | Public |
| PI Contribution | Through KCL's MRC Mental Health Data Pathfinder award, we have been able to assemble this diverse network of partners to enable the development of mental healthcare informatics resources at a national level. |
| Collaborator Contribution | We are working actively with University College London and University of Cambridge, and increasingly with University of Oxford on collaborative initiatives using CRIS and CRIS-like systems to provide research output from electronic health records data. We have active collaborations with Public Health England and the Department for Education on data linkages using CRIS, as data suppliers. |
| Impact | 1. A database has now been assembled for analysis linking our CRIS data with National Cancer Registry data (via Public Health England). 2. The GATE-Cloud natural language processing resource has been successfully set up in Azure (through collaboration with University of Cambridge). 3. External funding has been sourced for collaborative CRIS work (with University of Oxford) involving derivation of new data via KCL-hosted algorithms (and GATE-Cloud - see (2) above). The collaboration is multi-disciplinary involving clinical and non-clinical academic staff from Psychiatry, Epidemiology, Informatics, Computer Science, as well as colleagues in government bodies. |
| Start Year | 2018 |
| Description | King's Pathfinder network |
| Organisation | South London and Maudsley (SLAM) NHS Foundation Trust |
| Country | United Kingdom |
| Sector | Academic/University |
| PI Contribution | Through KCL's MRC Mental Health Data Pathfinder award, we have been able to assemble this diverse network of partners to enable the development of mental healthcare informatics resources at a national level. |
| Collaborator Contribution | We are working actively with University College London and University of Cambridge, and increasingly with University of Oxford on collaborative initiatives using CRIS and CRIS-like systems to provide research output from electronic health records data. We have active collaborations with Public Health England and the Department for Education on data linkages using CRIS, as data suppliers. |
| Impact | 1. A database has now been assembled for analysis linking our CRIS data with National Cancer Registry data (via Public Health England). 2. The GATE-Cloud natural language processing resource has been successfully set up in Azure (through collaboration with University of Cambridge). 3. External funding has been sourced for collaborative CRIS work (with University of Oxford) involving derivation of new data via KCL-hosted algorithms (and GATE-Cloud - see (2) above). The collaboration is multi-disciplinary involving clinical and non-clinical academic staff from Psychiatry, Epidemiology, Informatics, Computer Science, as well as colleagues in government bodies. |
| Start Year | 2018 |
| Description | King's Pathfinder network |
| Organisation | University College London |
| Country | United Kingdom |
| Sector | Academic/University |
| PI Contribution | Through KCL's MRC Mental Health Data Pathfinder award, we have been able to assemble this diverse network of partners to enable the development of mental healthcare informatics resources at a national level. |
| Collaborator Contribution | We are working actively with University College London and University of Cambridge, and increasingly with University of Oxford on collaborative initiatives using CRIS and CRIS-like systems to provide research output from electronic health records data. We have active collaborations with Public Health England and the Department for Education on data linkages using CRIS, as data suppliers. |
| Impact | 1. A database has now been assembled for analysis linking our CRIS data with National Cancer Registry data (via Public Health England). 2. The GATE-Cloud natural language processing resource has been successfully set up in Azure (through collaboration with University of Cambridge). 3. External funding has been sourced for collaborative CRIS work (with University of Oxford) involving derivation of new data via KCL-hosted algorithms (and GATE-Cloud - see (2) above). The collaboration is multi-disciplinary involving clinical and non-clinical academic staff from Psychiatry, Epidemiology, Informatics, Computer Science, as well as colleagues in government bodies. |
| Start Year | 2018 |
| Description | King's Pathfinder network |
| Organisation | University of Cambridge |
| Country | United Kingdom |
| Sector | Academic/University |
| PI Contribution | Through KCL's MRC Mental Health Data Pathfinder award, we have been able to assemble this diverse network of partners to enable the development of mental healthcare informatics resources at a national level. |
| Collaborator Contribution | We are working actively with University College London and University of Cambridge, and increasingly with University of Oxford on collaborative initiatives using CRIS and CRIS-like systems to provide research output from electronic health records data. We have active collaborations with Public Health England and the Department for Education on data linkages using CRIS, as data suppliers. |
| Impact | 1. A database has now been assembled for analysis linking our CRIS data with National Cancer Registry data (via Public Health England). 2. The GATE-Cloud natural language processing resource has been successfully set up in Azure (through collaboration with University of Cambridge). 3. External funding has been sourced for collaborative CRIS work (with University of Oxford) involving derivation of new data via KCL-hosted algorithms (and GATE-Cloud - see (2) above). The collaboration is multi-disciplinary involving clinical and non-clinical academic staff from Psychiatry, Epidemiology, Informatics, Computer Science, as well as colleagues in government bodies. |
| Start Year | 2018 |
| Description | King's Pathfinder network |
| Organisation | University of Nottingham |
| Country | United Kingdom |
| Sector | Academic/University |
| PI Contribution | Through KCL's MRC Mental Health Data Pathfinder award, we have been able to assemble this diverse network of partners to enable the development of mental healthcare informatics resources at a national level. |
| Collaborator Contribution | We are working actively with University College London and University of Cambridge, and increasingly with University of Oxford on collaborative initiatives using CRIS and CRIS-like systems to provide research output from electronic health records data. We have active collaborations with Public Health England and the Department for Education on data linkages using CRIS, as data suppliers. |
| Impact | 1. A database has now been assembled for analysis linking our CRIS data with National Cancer Registry data (via Public Health England). 2. The GATE-Cloud natural language processing resource has been successfully set up in Azure (through collaboration with University of Cambridge). 3. External funding has been sourced for collaborative CRIS work (with University of Oxford) involving derivation of new data via KCL-hosted algorithms (and GATE-Cloud - see (2) above). The collaboration is multi-disciplinary involving clinical and non-clinical academic staff from Psychiatry, Epidemiology, Informatics, Computer Science, as well as colleagues in government bodies. |
| Start Year | 2018 |
| Description | King's Pathfinder network |
| Organisation | University of Oxford |
| Country | United Kingdom |
| Sector | Academic/University |
| PI Contribution | Through KCL's MRC Mental Health Data Pathfinder award, we have been able to assemble this diverse network of partners to enable the development of mental healthcare informatics resources at a national level. |
| Collaborator Contribution | We are working actively with University College London and University of Cambridge, and increasingly with University of Oxford on collaborative initiatives using CRIS and CRIS-like systems to provide research output from electronic health records data. We have active collaborations with Public Health England and the Department for Education on data linkages using CRIS, as data suppliers. |
| Impact | 1. A database has now been assembled for analysis linking our CRIS data with National Cancer Registry data (via Public Health England). 2. The GATE-Cloud natural language processing resource has been successfully set up in Azure (through collaboration with University of Cambridge). 3. External funding has been sourced for collaborative CRIS work (with University of Oxford) involving derivation of new data via KCL-hosted algorithms (and GATE-Cloud - see (2) above). The collaboration is multi-disciplinary involving clinical and non-clinical academic staff from Psychiatry, Epidemiology, Informatics, Computer Science, as well as colleagues in government bodies. |
| Start Year | 2018 |
| Description | King's Pathfinder network |
| Organisation | University of Sussex |
| Department | Brighton and Sussex Medical School |
| Country | United Kingdom |
| Sector | Academic/University |
| PI Contribution | Through KCL's MRC Mental Health Data Pathfinder award, we have been able to assemble this diverse network of partners to enable the development of mental healthcare informatics resources at a national level. |
| Collaborator Contribution | We are working actively with University College London and University of Cambridge, and increasingly with University of Oxford on collaborative initiatives using CRIS and CRIS-like systems to provide research output from electronic health records data. We have active collaborations with Public Health England and the Department for Education on data linkages using CRIS, as data suppliers. |
| Impact | 1. A database has now been assembled for analysis linking our CRIS data with National Cancer Registry data (via Public Health England). 2. The GATE-Cloud natural language processing resource has been successfully set up in Azure (through collaboration with University of Cambridge). 3. External funding has been sourced for collaborative CRIS work (with University of Oxford) involving derivation of new data via KCL-hosted algorithms (and GATE-Cloud - see (2) above). The collaboration is multi-disciplinary involving clinical and non-clinical academic staff from Psychiatry, Epidemiology, Informatics, Computer Science, as well as colleagues in government bodies. |
| Start Year | 2018 |
| Description | Mental Health Translational Research Collaborative (MH-TRC) medical informatics working group |
| Organisation | Cardiff University |
| Department | School of Medicine |
| Country | United Kingdom |
| Sector | Academic/University |
| PI Contribution | I proposed a medical informatics working group for the NIHR MH-TRC which was adopted and is now up and running (and I am an active partner in this). Through this partnership, I was able to lead a piece of work evaluating mental healthcare provision changes across 10 sites during the first wave of the COVID-19 pandemic. |
| Collaborator Contribution | Most NIHR-associated academic centres, plus centres receiving equivalent funding in devolved nations, contribute to the medical informatics working group and to the COVID-19 exemplar project. |
| Impact | The collaboration is multi-disciplinary with academic leads drawn from varying medical and non-medical disciplines. |
| Start Year | 2020 |
| Description | Mental Health Translational Research Collaborative (MH-TRC) medical informatics working group |
| Organisation | Swansea University |
| Department | Swansea University Medical School |
| Country | United Kingdom |
| Sector | Academic/University |
| PI Contribution | I proposed a medical informatics working group for the NIHR MH-TRC which was adopted and is now up and running (and I am an active partner in this). Through this partnership, I was able to lead a piece of work evaluating mental healthcare provision changes across 10 sites during the first wave of the COVID-19 pandemic. |
| Collaborator Contribution | Most NIHR-associated academic centres, plus centres receiving equivalent funding in devolved nations, contribute to the medical informatics working group and to the COVID-19 exemplar project. |
| Impact | The collaboration is multi-disciplinary with academic leads drawn from varying medical and non-medical disciplines. |
| Start Year | 2020 |
| Description | Mental Health Translational Research Collaborative (MH-TRC) medical informatics working group |
| Organisation | University College London |
| Department | Medical School |
| Country | United Kingdom |
| Sector | Academic/University |
| PI Contribution | I proposed a medical informatics working group for the NIHR MH-TRC which was adopted and is now up and running (and I am an active partner in this). Through this partnership, I was able to lead a piece of work evaluating mental healthcare provision changes across 10 sites during the first wave of the COVID-19 pandemic. |
| Collaborator Contribution | Most NIHR-associated academic centres, plus centres receiving equivalent funding in devolved nations, contribute to the medical informatics working group and to the COVID-19 exemplar project. |
| Impact | The collaboration is multi-disciplinary with academic leads drawn from varying medical and non-medical disciplines. |
| Start Year | 2020 |
| Description | Mental Health Translational Research Collaborative (MH-TRC) medical informatics working group |
| Organisation | University of Cambridge |
| Department | Department of Psychiatry |
| Country | United Kingdom |
| Sector | Academic/University |
| PI Contribution | I proposed a medical informatics working group for the NIHR MH-TRC which was adopted and is now up and running (and I am an active partner in this). Through this partnership, I was able to lead a piece of work evaluating mental healthcare provision changes across 10 sites during the first wave of the COVID-19 pandemic. |
| Collaborator Contribution | Most NIHR-associated academic centres, plus centres receiving equivalent funding in devolved nations, contribute to the medical informatics working group and to the COVID-19 exemplar project. |
| Impact | The collaboration is multi-disciplinary with academic leads drawn from varying medical and non-medical disciplines. |
| Start Year | 2020 |
| Description | Mental Health Translational Research Collaborative (MH-TRC) medical informatics working group |
| Organisation | University of Edinburgh |
| Department | Medical School Edinburgh |
| Country | United Kingdom |
| Sector | Academic/University |
| PI Contribution | I proposed a medical informatics working group for the NIHR MH-TRC which was adopted and is now up and running (and I am an active partner in this). Through this partnership, I was able to lead a piece of work evaluating mental healthcare provision changes across 10 sites during the first wave of the COVID-19 pandemic. |
| Collaborator Contribution | Most NIHR-associated academic centres, plus centres receiving equivalent funding in devolved nations, contribute to the medical informatics working group and to the COVID-19 exemplar project. |
| Impact | The collaboration is multi-disciplinary with academic leads drawn from varying medical and non-medical disciplines. |
| Start Year | 2020 |
| Description | Mental Health Translational Research Collaborative (MH-TRC) medical informatics working group |
| Organisation | University of Glasgow |
| Department | School of Medicine Glasgow |
| Country | United Kingdom |
| Sector | Academic/University |
| PI Contribution | I proposed a medical informatics working group for the NIHR MH-TRC which was adopted and is now up and running (and I am an active partner in this). Through this partnership, I was able to lead a piece of work evaluating mental healthcare provision changes across 10 sites during the first wave of the COVID-19 pandemic. |
| Collaborator Contribution | Most NIHR-associated academic centres, plus centres receiving equivalent funding in devolved nations, contribute to the medical informatics working group and to the COVID-19 exemplar project. |
| Impact | The collaboration is multi-disciplinary with academic leads drawn from varying medical and non-medical disciplines. |
| Start Year | 2020 |
| Description | Mental Health Translational Research Collaborative (MH-TRC) medical informatics working group |
| Organisation | University of Manchester |
| Department | School of Medicine Manchester |
| Country | United Kingdom |
| Sector | Academic/University |
| PI Contribution | I proposed a medical informatics working group for the NIHR MH-TRC which was adopted and is now up and running (and I am an active partner in this). Through this partnership, I was able to lead a piece of work evaluating mental healthcare provision changes across 10 sites during the first wave of the COVID-19 pandemic. |
| Collaborator Contribution | Most NIHR-associated academic centres, plus centres receiving equivalent funding in devolved nations, contribute to the medical informatics working group and to the COVID-19 exemplar project. |
| Impact | The collaboration is multi-disciplinary with academic leads drawn from varying medical and non-medical disciplines. |
| Start Year | 2020 |
| Description | Mental Health Translational Research Collaborative (MH-TRC) medical informatics working group |
| Organisation | University of Nottingham |
| Country | United Kingdom |
| Sector | Academic/University |
| PI Contribution | I proposed a medical informatics working group for the NIHR MH-TRC which was adopted and is now up and running (and I am an active partner in this). Through this partnership, I was able to lead a piece of work evaluating mental healthcare provision changes across 10 sites during the first wave of the COVID-19 pandemic. |
| Collaborator Contribution | Most NIHR-associated academic centres, plus centres receiving equivalent funding in devolved nations, contribute to the medical informatics working group and to the COVID-19 exemplar project. |
| Impact | The collaboration is multi-disciplinary with academic leads drawn from varying medical and non-medical disciplines. |
| Start Year | 2020 |
| Description | Mental Health Translational Research Collaborative (MH-TRC) medical informatics working group |
| Organisation | University of Oxford |
| Department | Department of Psychiatry |
| Country | United Kingdom |
| Sector | Academic/University |
| PI Contribution | I proposed a medical informatics working group for the NIHR MH-TRC which was adopted and is now up and running (and I am an active partner in this). Through this partnership, I was able to lead a piece of work evaluating mental healthcare provision changes across 10 sites during the first wave of the COVID-19 pandemic. |
| Collaborator Contribution | Most NIHR-associated academic centres, plus centres receiving equivalent funding in devolved nations, contribute to the medical informatics working group and to the COVID-19 exemplar project. |
| Impact | The collaboration is multi-disciplinary with academic leads drawn from varying medical and non-medical disciplines. |
| Start Year | 2020 |
| Description | Mental Health Translational Research Collaborative (MH-TRC) medical informatics working group |
| Organisation | University of Southampton |
| Department | Southampton Medical School |
| Country | United Kingdom |
| Sector | Academic/University |
| PI Contribution | I proposed a medical informatics working group for the NIHR MH-TRC which was adopted and is now up and running (and I am an active partner in this). Through this partnership, I was able to lead a piece of work evaluating mental healthcare provision changes across 10 sites during the first wave of the COVID-19 pandemic. |
| Collaborator Contribution | Most NIHR-associated academic centres, plus centres receiving equivalent funding in devolved nations, contribute to the medical informatics working group and to the COVID-19 exemplar project. |
| Impact | The collaboration is multi-disciplinary with academic leads drawn from varying medical and non-medical disciplines. |
| Start Year | 2020 |
| Description | Talk Life |
| Organisation | Swansea University |
| Department | Swansea University Medical School |
| Country | United Kingdom |
| Sector | Academic/University |
| PI Contribution | Research into the relationship of self-harm and social media images. |
| Collaborator Contribution | Sharing of data (specifically images) for use in our research. |
| Impact | Signed collaboration agreement for the sharing of data, in order to carry out a project on self-harm and social media images. Initial analyses completed, data algorithms being created. |
| Start Year | 2019 |
| Description | The Kooth - |
| Organisation | Kooth Plc |
| Country | United Kingdom |
| Sector | Private |
| PI Contribution | Data sharing agreement to store the data in accordance with data protection laws for the purposes of an analysis & academic collaboration project. |
| Collaborator Contribution | Using data from an online support and counselling service in the UK for young people these are the research questions: i) Has there been a change in the number of contacts pre and post COVID-19?; ii) Has there been a change in the presenting complaints pre and post COVID-19 (incident cases)?; iii) Has there been a change in the referral source pre and post COVID-19?; and iv) Is there any evidence that any changes observed vary by ethnic minority status, gender and area level deprivation? |
| Impact | Data sharing agreement. |
| Start Year | 2020 |
| Description | The Kooth - |
| Organisation | Swansea University |
| Country | United Kingdom |
| Sector | Academic/University |
| PI Contribution | Data sharing agreement to store the data in accordance with data protection laws for the purposes of an analysis & academic collaboration project. |
| Collaborator Contribution | Using data from an online support and counselling service in the UK for young people these are the research questions: i) Has there been a change in the number of contacts pre and post COVID-19?; ii) Has there been a change in the presenting complaints pre and post COVID-19 (incident cases)?; iii) Has there been a change in the referral source pre and post COVID-19?; and iv) Is there any evidence that any changes observed vary by ethnic minority status, gender and area level deprivation? |
| Impact | Data sharing agreement. |
| Start Year | 2020 |
| Title | Medichec Version 3 |
| Description | Medichec is an app and website that supports prescribing in dementia particularly, but with relevance to older adults more generally, by collating information on known adverse effects of prescribed medications. Version 3, released in autumn 2023, now covers central anticholinergic effects, sedation, dizziness/drowsiness, bleeding risk, hyponatraemia, constipation, and QTc prolongation. |
| Type | Support Tool - For Medical Intervention |
| Current Stage Of Development | Wide-scale adoption |
| Year Development Stage Completed | 2023 |
| Development Status | Under active development/distribution |
| Impact | Earlier versions of medichec are already accessed in all world regions and have become routine in many memory assessment services. |
| URL | https://medichec.com/ |
| Title | CRATE extensions for de-identified Bayesian record linkage |
| Description | Extensions (doi:10.1186/s12911-023-02176-6) to CRATE (doi:10.1186/s12911-017-0437-1), available at https://crateanon.readthedocs.io/, to support de-identified linkage of records without a common person-unique identifier. |
| Type Of Technology | Software |
| Year Produced | 2023 |
| Open Source License? | Yes |
| Impact | Not catalogued. |
| URL | https://doi.org/10.1186/s12911-023-02176-6 |
| Title | Medichec Version 3 |
| Description | A website and app to enable medications to be labelled according to published adverse effects. In addition to the central anticholinergic effects, drowsiness, and dizziness available in earlier versions, new functionality has been developed for QTc prolongation, hyponatraemia, bleeding risk, and constipation. |
| Type Of Technology | Webtool/Application |
| Year Produced | 2023 |
| Impact | Under evaluation. Previous versions have had global reach. |
| URL | https://medichec.com/ |
| Description | 'Do the Right Thing', Cochrane Theatre, Southampton Row, London. - 27th January 2019 |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Industry/Business |
| Results and Impact | debate regarding 'Do the Right Thing', Cochrane Theatre, Southampton Row, London. |
| Year(s) Of Engagement Activity | 2019 |
| Description | 20th Congress of EPA Section of Epidemiology & Social Psychiatry. - 8th September 2022 |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Industry/Business |
| Results and Impact | conference for 20th Congress of EPA Section of Epidemiology & Social Psychiatry |
| Year(s) Of Engagement Activity | 2022 |
| Description | A PPIE group set up to review COVID-19 pandemic relevant research using local data |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | Local |
| Primary Audience | Patients, carers and/or patient groups |
| Results and Impact | A PPIE group was set up with approximately monthly meetings over at least a 6-month period now. The purpose has been to review data-derived work of particular relevance for the COVID-19 pandemic in local mental healthcare. |
| Year(s) Of Engagement Activity | 2020 |
| Description | A novel PPIE group to inform healthcare natural language processing strategy and output |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | Local |
| Primary Audience | Patients, carers and/or patient groups |
| Results and Impact | Around 15 patients and carers have been recruited for ongoing oversight of natural language processing developments using mental healthcare records data held at the Maudsley CRIS resource. Having received three training sessions, quarterly review meetings are planned going forward. As far as we are aware, this is the first such dedicated group established, but we will look to develop/support wider networks. |
| Year(s) Of Engagement Activity | 2024 |
| Description | A presentation on how to get started in an academic career |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Professional Practitioners |
| Results and Impact | A presentation for the London Division of the Royal College of Psychiatrists on 'how to do research' |
| Year(s) Of Engagement Activity | 2023 |
| Description | A presentation on mental healthcare informatics to a Danish research group |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | A presentation on mental healthcare data science and its opportunities and challenges to a large Danish research group and an invited wider audience. Lively discussion was stimulated. |
| Year(s) Of Engagement Activity | 2022 |
| Description | A presentation on mental healthcare informatics used to investigate loneliness post-pandemic |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | A presentation to the Royal College of Psychiatrists Faculty of Old Age Psychiatry congress showing how mental healthcare data science resources were used to investigate loneliness and its correlates before and during the COVID-19 pandemic. Well attended and a good discussion afterwards. |
| Year(s) Of Engagement Activity | 2022 |
| Description | A presentation on mind and body in ageing |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Public/other audiences |
| Results and Impact | An invited talk at a symposium to mark the completion of the AGECAP multi-disciplinary ageing research collaboration at the University of Gothenburg. Attended by a mixed public/professional audience. |
| Year(s) Of Engagement Activity | 2023 |
| Description | A presentation on physical health in dementia |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Regional |
| Primary Audience | Professional Practitioners |
| Results and Impact | Two presentations given to mental health Trusts on physical health outcomes in dementia and memory service models |
| Year(s) Of Engagement Activity | 2023 |
| Description | A presentation on the DATAMIND hub for mental health data science |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | A presentation to the annual Alleviate conference on pain research, outlining the DATAMIND hub and its activities. |
| Year(s) Of Engagement Activity | 2023 |
| Description | A presentation on violence and mental health data science |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | A presentation and chairing of a symposium at the Edinburgh Prevention Congress on violence and mental health data science developed via the VISION Consortium. |
| Year(s) Of Engagement Activity | 2023 |
| Description | A symposium on mental healthcare data science |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | A chaired symposium, well-attended, at the European Psychiatric Association Section of Epidemiology and Social Psychiatry congress. Focused on mental healthcare data science, particularly that using electronic health records data, and stimulated lively discussion. |
| Year(s) Of Engagement Activity | 2022 |
| Description | A talk on computational psychiatry to the Centre for Lifelong Learning and Individualised Cognition, Singapore |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | A talk on computational psychiatry methods to a cognition research centre, which has led to greater use of these techniques. |
| Year(s) Of Engagement Activity | 2021 |
| Description | ADHD and social isolation paper - Thompson 2023 |
| Form Of Engagement Activity | A press release, press conference or response to a media enquiry/interview |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Media (as a channel to the public) |
| Results and Impact | The Independent reports our findings on children with ADHD and social isolation. |
| Year(s) Of Engagement Activity | 2023 |
| URL | https://www.independent.co.uk/news/uk/adhd-children-british-research-b2309831.html |
| Description | APMS Academic meeting to discuss APMS data. - 10th June 2021 |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Industry/Business |
| Results and Impact | Meeting - APMS Academic meeting to discuss APMS data |
| Year(s) Of Engagement Activity | 2021 |
| Description | Arseneault 2023 |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | Louise Arseneault contributed a presentation at the 17th European Society for Traumatic Stress Studies conference. The presentation was entitled: 'The Catalogue of Mental Health Measures: Discovering the depths of mental health data in UK longitudinal studies.' |
| Year(s) Of Engagement Activity | 2023 |
| Description | Arseneault 2023 |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | Louise Arseneault contributed a presentation to the 5th Congress of the joint European Neonatal Societies (jENS). The presentation was entitled 'The social environment of children: How it shapes mental health and cognition.' |
| Year(s) Of Engagement Activity | 2023 |
| Description | Arseneault 2023 |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Local |
| Primary Audience | Postgraduate students |
| Results and Impact | Louise Arseneault contributed a presentation at King's College London/ the Social, Genetic and Developmental Psychiatry Centre weekly seminar series. The presentation was entitled: 'A year searching the world for longitudinal datasets: Reflections on richness and opportunities.' |
| Year(s) Of Engagement Activity | 2023 |
| Description | Arseneault 2023 |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | Louise Arseneault contributed a presentation to the 14th Annual International Network for Research on Inequalities in Child Health (INRICH) Workshop. The presentation was entitled: 'Bullying at school'. |
| Year(s) Of Engagement Activity | 2023 |
| Description | Arseneault 2023 |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Public/other audiences |
| Results and Impact | Louise Arseneault made a invited public lecture at Cardiff University as part of the Waterloo Foundation Annual Meeting. the presentation was entitled 'Why social relationships are important for your mental health'. |
| Year(s) Of Engagement Activity | 2023 |
| Description | Arseneault 2023 |
| Form Of Engagement Activity | Engagement focused website, blog or social media channel |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Public/other audiences |
| Results and Impact | Louise Arseneault wrote a blog for the Landscaping project. The blog was entitled: 'Epilogue of a research adventure.' |
| Year(s) Of Engagement Activity | 2023 |
| URL | https://www.landscaping-longitudinal-research.com/blog/la-2 |
| Description | Arseneault 2023 |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Postgraduate students |
| Results and Impact | Louise Arseneault contributed a lecture to the Boston University Center for Trauma and Mental Health seminar series. The presentation was entitled: 'Landscaping International Longitudinal Datasets'. |
| Year(s) Of Engagement Activity | 2023 |
| Description | Children social isolation and mental health - Thompson 2023 |
| Form Of Engagement Activity | A broadcast e.g. TV/radio/film/podcast (other than news/press) |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Media (as a channel to the public) |
| Results and Impact | KCL filmed Katie Thompson about her research on how does childhood social isolation impact mental health? She explains how social isolation can vary across childhood and discusses which children are most at risk of developing poor mental health. |
| Year(s) Of Engagement Activity | 2023 |
| URL | https://twitter.com/KingsIoPPN/status/1623284059345494023 |
| Description | Conversation with member of UK-Electoral Commission about potential voting-related research in NI |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Conversation with member of UK-Electoral Commission about potential voting-related research in NI ... very fruitful conversation on process and application. |
| Year(s) Of Engagement Activity | 2022 |
| Description | DATAMIND/MQ Early Career Researchers Workshop. - 27th September 2022 |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Industry/Business |
| Results and Impact | DATAMIND/MQ Early Career Researchers Workshop |
| Year(s) Of Engagement Activity | 2022 |
| Description | Datamind Industrial Forum, London. - 28th January 2022 |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Industry/Business |
| Results and Impact | Meeting/ conference - Datamind Industrial Forum, London |
| Year(s) Of Engagement Activity | 2022 |
| Description | Engaging the DATAMIND patient/public research advisory group with the Industrial Forum |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Industry/Business |
| Results and Impact | Presentation and initial engagement between the DATAMIND patient/public Research Advisory Group and representatives of the commercial/industrial sector, 28 Jan 2022 |
| Year(s) Of Engagement Activity | 2022 |
| Description | European Public Health Conference. - 10th November 2022 |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Industry/Business |
| Results and Impact | European Public Health Conference |
| Year(s) Of Engagement Activity | 2022 |
| Description | MQ DATAMIND Data Science Meeting. - 23rd march 2022 |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Industry/Business |
| Results and Impact | Meeting - MQ DATAMIND Data Science Meeting |
| Year(s) Of Engagement Activity | 2022 |
| Description | MQ DATAMIND ECR Workshop. - 28th April 2022 |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Industry/Business |
| Results and Impact | MQ DATAMIND ECR Workshop |
| Year(s) Of Engagement Activity | 2022 |
| Description | MQ Data Science Meeting : Programming in Mental Health Research Workshop - September 2022 |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Other audiences |
| Results and Impact | Workshop held by MQ Data Science meeting on Programming in Mental Health Research. |
| Year(s) Of Engagement Activity | 2022 |
| Description | MQ G2S online workshop. - 28th February 2022 |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Industry/Business |
| Results and Impact | MQ G2S online workshop |
| Year(s) Of Engagement Activity | 2022 |
| Description | MQ Stakeholder Engagement & Communication Workshop. 1st June 2022 |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Industry/Business |
| Results and Impact | MQ Stakeholder Engagement & Communication Workshop |
| Year(s) Of Engagement Activity | 2022 |
| Description | MQ book interview, MQ, London. - 10th January |
| Form Of Engagement Activity | A press release, press conference or response to a media enquiry/interview |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Public/other audiences |
| Results and Impact | MQ book interview, MQ, London |
| Year(s) Of Engagement Activity | 2022 |
| Description | Meeting with senior members of PSNI to discuss research related to firearms certificate holders |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Meeting with senior members of PSNI to discuss research related to firearms certificate holders. Small presentation followed by discussion of further analysis planned and possible policy implications |
| Year(s) Of Engagement Activity | 2022 |
| Description | Presentation at Colt Foundation Annual Research Meeting - Bryan 2023 |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Local |
| Primary Audience | Postgraduate students |
| Results and Impact | Members of the Colt Foundation, trustees and funded researchers attend that yearly meeting in London. We get to hear about the future direction of the Foundation and also research conducted by students funded by this stimulating and supportive charity. Title of the presentation: 'Loneliness and employment outcomes in young adulthood' |
| Year(s) Of Engagement Activity | 2023 |
| Description | Presentation at the SGDP Centre - weekly seminar series - Bryan 2023 |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Local |
| Primary Audience | Postgraduate students |
| Results and Impact | Title of the presentation: 'Socioeconomic consequences of loneliness in young adulthood' |
| Year(s) Of Engagement Activity | 2023 |
| Description | Presentation entitled 'Are people with poor mental health less likely to receive Disability Benefits? A population wide record linkage study' to conference in Venice |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Postgraduate students |
| Results and Impact | Presentation entitled 'Are people with poor mental health less likely to receive Disability Benefits? A population wide record linkage study' to conference in Venice. A very lively discussion held.... |
| Year(s) Of Engagement Activity | 2022 |
| Description | Presentation entitled... Data linkage, future directions, potential and challenges...to team responsible for review of NI Social Services for children |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Presentation trying to influence the team responsible for review of NI Social Services for children, in both our use of admin data and interest them in some of our findings. |
| Year(s) Of Engagement Activity | 2022 |
| Description | Presentation to Welsh Government Education Policy: Understanding the mental health of pupils Educated in Other Than At School (EOTAS) A Retrospective e-cohort study utilising the Secure Anonymised Information Linkage (SAIL) electronic databank. - 2023 |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Understanding the mental health of pupils Educated in Other Than At School (EOTAS) A Retrospective e-cohort study utilising the Secure Anonymised Information Linkage (SAIL) electronic databank. Presentation to Welsh Government Education Policy Administrative Data Research Centres 2018 |
| Year(s) Of Engagement Activity | 2023 |
| Description | Presentation to Welsh Government health Policy: Understanding the mental health of pupils Educated in Other Than At School (EOTAS) A Retrospective e-cohort study utilising the Secure Anonymised Information Linkage (SAIL) electronic databank. - 2023 |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Policymakers/politicians |
| Results and Impact | Presentation to Welsh Government health Policy: Understanding the mental health of pupils Educated in Other Than At School (EOTAS) A Retrospective e-cohort study utilising the Secure Anonymised Information Linkage (SAIL) electronic databank. - 2023 Administrative Data Research Centres 2018 |
| Year(s) Of Engagement Activity | 2023 |
| Description | Presentation to data scientists at the Public Health Agency (PHA) |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Presentation to data scientists at the Public Health Agency (PHA)...this covered our current research activities and future strategic directions as well as a discussion of some of our (NI) data limitations. |
| Year(s) Of Engagement Activity | 2023 |
| Description | Presentation to inter-departmental Children's Champion Group on research activity esp related to the use of administration data |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Policymakers/politicians |
| Results and Impact | I presented our current research portfolio and plans relating to children to about 30 people who constitute the Children's Champion Group (a group led by the the NI Children and Young Persons Commissioner). Very positive response...desire to hear more! |
| Year(s) Of Engagement Activity | 2022 |
| Description | Presentation to whole DataMind team entitled 'Road Builder Innovation 2: Discoverable excluded and under-served groups' |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Other audiences |
| Results and Impact | This was the first presentation of the work schedule and plans for this Road Builder and we made the case for why we needed to look at these groups and how we would achieve our aims. |
| Year(s) Of Engagement Activity | 2023 |
| Description | Public Launch of report on Mortality inequalities.Health Inequalities . ERSI 15th Sept 2022 |
| Form Of Engagement Activity | A press release, press conference or response to a media enquiry/interview |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Media (as a channel to the public) |
| Results and Impact | Public Launch of report on Mortality inequalities.Health Inequalities I had to make a speech/response to the launch and field questions to the general audience and press. |
| Year(s) Of Engagement Activity | 2022 |
| Description | Research symposium on violence data science |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | Presentation and chairing at a European Congress on Domestic Violence (ECDV) symposium, focusing on natural language processing and related developments via the VISION consortium. |
| Year(s) Of Engagement Activity | 2023 |
| Description | Speaker at the Bioethics Annual Conference 2022, University of Bristol. - 22nd March 2022 |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Industry/Business |
| Results and Impact | Conference Speaker at the Bioethics Annual Conference 2022, University of Bristol |
| Year(s) Of Engagement Activity | 2022 |
| Description | Speaker at the suicidal ideation webinar. - 31st March 2022 |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Industry/Business |
| Results and Impact | Speaker at the suicidal ideation webinar |
| Year(s) Of Engagement Activity | 2022 |
| Description | Talk to a school about psychosis |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Local |
| Primary Audience | Schools |
| Results and Impact | Talk to a school about psychosis and discussion afterwards |
| Year(s) Of Engagement Activity | 2024 |
| Description | Talk to a school on research databases, Peterborough |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | Local |
| Primary Audience | Schools |
| Results and Impact | Talk to a school about research databases in the NHS, as a voluntary contribution to their BTEC programme. |
| Year(s) Of Engagement Activity | 2022 |
| Description | Talk to the Royal College of Psychiatrists Faculty of Liaison Psychiatry conference, on digitisation in liaison psychiatry |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Talk on clinical digitisation to the RCPsych Faculty of Liaison Psychiatry conference, 11 May 2023, and subsequent discussion. |
| Year(s) Of Engagement Activity | 2023 |
| Description | Thompson 2023 |
| Form Of Engagement Activity | Engagement focused website, blog or social media channel |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Public/other audiences |
| Results and Impact | Katie Thompson wrote a blog for Cardiff University. |
| Year(s) Of Engagement Activity | 2023 |
| URL | https://blogs.cardiff.ac.uk/innovation/2024/02/07/do-experiences-of-social-isolation-impact-the-ment... |
| Description | Thompson 2023 |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | Poster presentation by Katie Thompson at the International Convention of Psychological Science (2023). The poster was entitled: Do Children with ADHD Symptoms Become Socially Isolated? Longitudinal within-Person Associations in a Nationally Representative Cohort |
| Year(s) Of Engagement Activity | 2023 |
| Description | Thompson 2023 |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | Katie Thompson presented a poster at the European Social Science Genetics Network (2023). The poster was entitled 'The overlap between social isolation and mental health symptoms: Longitudinal independent pathway model in a nationally representative cohort' |
| Year(s) Of Engagement Activity | 2023 |
| Description | Thompson 2023 |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | Katie Thompson contributed an oral presentation at the European Psychiatric Association Paris Congress (2023). The presentation was entitled 'Do Children with ADHD Symptoms Become Socially Isolated? Longitudinal within-Person Associations in a Nationally Representative Cohort' |
| Year(s) Of Engagement Activity | 2023 |
| Description | Thompson 2023 |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | Katie Thompson contributed a poster at the Sociogenomics workshop in Helsinki (2023). The poster was entitled 'The overlap between social isolation and mental health symptoms: Longitudinal independent pathway model in a nationally representative cohort' |
| Year(s) Of Engagement Activity | 2023 |
| Description | UK Biological Security Strategy Roundtable: Pandemics and Emerging Infectious Diseases. - 19th April 2022 |
| Form Of Engagement Activity | A formal working group, expert panel or dialogue |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Industry/Business |
| Results and Impact | Meeting regarding UK Biological Security Strategy Roundtable: Pandemics and Emerging Infectious Diseases |
| Year(s) Of Engagement Activity | 2022 |
| Description | Uses and availability of health data inn Ireland...public launch of report |
| Form Of Engagement Activity | A press release, press conference or response to a media enquiry/interview |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Public/other audiences |
| Results and Impact | Over 100 people attended (virtually) this ERSI-sponsored launch of the Report. I had to make a presentation/response and field questions. |
| Year(s) Of Engagement Activity | 2022 |
| Description | WHO Regional office for Europe on Big data analytics and AI in mental health- Talk on Using Big Data Analytics to address complex questions about mental health - 2022 |
| Form Of Engagement Activity | A talk or presentation |
| Part Of Official Scheme? | No |
| Geographic Reach | International |
| Primary Audience | Professional Practitioners |
| Results and Impact | The Divison of Country Health Policies and systems at the WHO Regional office for Europe on Big data analytics and AI in mental health discussion about Using Big Data Analytics to address complex questions about mental health |
| Year(s) Of Engagement Activity | 2022 |
| Description | Wellcome Mental Health Data Prize - Data Science Support Workshop (Open Science). - 9th November 2022 |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Industry/Business |
| Results and Impact | Workshop - Wellcome Mental Health Data Prize - Data Science Support Workshop (Open Science) |
| Year(s) Of Engagement Activity | 2022 |
| Description | Workshop for early-career researchers on patient/public involvement in mental health research |
| Form Of Engagement Activity | Participation in an activity, workshop or similar |
| Part Of Official Scheme? | No |
| Geographic Reach | National |
| Primary Audience | Professional Practitioners |
| Results and Impact | Forum chaired by Linda Jones (Cambridge DATAMIND team). MQ (https://www.mqmentalhealth.org/) "coffee morning" for early-career researchers, on patient and public involvement/engagement in mental health research. Event date 22/2/24. |
| Year(s) Of Engagement Activity | 2024 |